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NRAS-Emma
#1 Posted : Friday, February 08, 2013 1:53:31 PM Quote
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"This is a hugely exciting step forward" says NRAS CEO, Ailsa Bosworth of this encouraging research -

http://www.express.co.uk...-jab-can-beat-arthritis

If there's any updates on this we will of course keep all of our Members informed!

Happy weekend all!

BW, Emma

Anthea1948
#2 Posted : Friday, February 08, 2013 3:49:16 PM Quote
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Slightly bothered by the fact that the headlines (and not just in this paper) read 'arthritis' and once again rheumatoid disease is lumped in with general arthritis, thereby lowering the public's understanding of exactly what rheumatoid disease is. Although osteoarthritis is mentioned in the article there is no implication that the drug currently undergoing human trials will be of benefit to patients with osteoarthritis. Surely to raise our profile in the public domain we need to be called Rheumatoid Disease sufferers, so that perhaps people will sit up and take notice of the change?
FIONA752
#3 Posted : Friday, February 08, 2013 9:11:48 PM Quote
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This article has me confused!

"Because it helps brittle bone disease" it could help Osteo and Rheumatoid Arthritis?

I didn't know there was a connection between Brittle bone disease and R.A?

(Cause-wise, anyway.)

Also a course of the antibiotic Doxycicline gave me the best remission in 18 years that

I have ever had and it was prescribed for an infection.

I researched it online and found that it is a recognised and prescribed treatment in America

for R.A.

My course of this antibiotic was only for one week and I experienced a remission of at least

3 months!

FionaHuh


annamaria
#4 Posted : Saturday, February 09, 2013 12:28:11 PM Quote
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This does look an exciting breakthrough - watch this space! As always it could be some years for the drug trials to be completed.

But any positive news like this is so welcome, also that research is being done all the time on our behalf giving much hope to future generations.

Sometimes wish they would use younger models in photos when talking about RA though, makes more impact on the general public I think!
xx
FIONA752
#5 Posted : Saturday, February 09, 2013 8:32:33 PM Quote
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Dear Annamaria,

I do agree with you about younger people being used to illustrate R.A.

I really did used to think that any "arthritis" was a disease of the elderly!

It is so misleading and the younger people in photographs would make a difference!

Best wishes,

FionaThumpUp
anne_t
#6 Posted : Saturday, February 09, 2013 8:40:40 PM Quote
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Location: Rainham Kent
I hope the "model" gave her fee to NRAS !!. It's nice to know that
Prof..Panayi is still on our case and that his research is proving
valuable. Perhaps one or two drops of my blood have helped.
We were always asked for an extra tube "for research". Anne
Naomi1
#7 Posted : Sunday, February 10, 2013 12:55:08 PM Quote
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I totally agree with you Annamaria about using younger models. It helps to highlight that this is not osteo. I'm sure NRAS could have supplied them with REAL photo rather than one posed by a model if they'd asked. Grrr. I hate the way RA is dealt with in the media.
Louisa
#8 Posted : Sunday, February 10, 2013 2:20:03 PM Quote
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Location: Suffolk.
I live in a town that has a very high elderly population and I can't count how many times I have been told I am 'too young to have RA'. It gets tiring.
Naomi1
#9 Posted : Monday, February 11, 2013 9:42:28 PM Quote
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Louisa, you would make a great RA model! xxx
NRAS-Emma
#10 Posted : Thursday, March 07, 2013 4:47:46 PM Quote
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Dear all

Please see latest press release from NRAS:


Introduction of Best Practice Tariff for early inflammatory arthritis

The National Rheumatoid Arthritis Society welcomes the introduction of a new Best Practice Tariff for early inflammatory arthritis including rheumatoid arthritis, a condition that an estimated 690,000 people in the UK live with.

It has been widely acknowledged that the best chance for newly diagnosed patients to achieve clinical remission is to be started on treatment within twelve weeks of symptom onset, however this does not routinely usually happen. This Best Practice Tariff provides a financial incentive to secondary care providers that will hopefully end any variation in the treatment given between different areas of the country and enable all patients to receive evidence based and timely treatment.

As of April 2013, people who develop inflammatory arthritis should expect:

• To be seen by a rheumatologist within three weeks of a GP referral
• To receive their diagnosis and start treatment within six weeks of a GP referral
• To have regular review appointments with their rheumatologist until their arthritis is adequately controlled.

More can be found on our website here: http://www.nras.org.uk/c...ammatory_arthritis.aspx

Best wishes,
Emma
NRAS-Emma
#11 Posted : Tuesday, March 12, 2013 11:15:10 AM Quote
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Very uplifting story from the Daily Mail today:

http://www.dailymail.co....ng-elbows-replaced.html

Best wishes,
Emma
Jane.
#12 Posted : Tuesday, March 12, 2013 2:41:13 PM Quote
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Location: where the sun always shines :o
BigGrin the story of the young bride......what a lovely story having her elbows done so she has independance, and her husband does not need to help her out.
I put comments on the daily mail saying how happy I am for them!

Its amazing what the surgeons can do.
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